Be sure to check the Bowie Area Links, too. many of our Local Resource & Support sites are also nationally important resources |here|

Note: Many of the available downloadable publications for Parkinson's Disease are in PDF format; you will need to install Adobe's free PDF reader to access them on your hard drive if it is not already installed |link|


  • National Parkinson's Foundation ("NPF") | link |

    • Parkinson's Disease Foundation ("PDF") | link | PDF fact sheets | link |

  • American Parkinson Disease Association (ADA) | link |

    • NIH Institute and Center Resources - Parkinson's Disease Resource Page | link |
    • Parkinson's Disease Research Web: National Institutes of Neurological Disorders and Stroke (NINDS from NIH) | link |

    Join the Parkinson's Web Electronic Mailing List - NINDS LISTSERV | link |

    Parkinson Action Network, Washington, DC | link |

    Movement Disorder Society | link |


    • The Michael J. Fox Foundation for Parkinson's Research
    • | link |

    • Parkinsons Information Exchange Network Online (P-I-E-N-O)| link | - PIENO is the official website of the "Parkinsn List," an early E-Mail List. The Site has the Mailing List Archives Online. You can also Subscribe to the Mailing List, still in operation. The "How-To" is located on the page found |here|.

      • A well-organized set of Resource Links from The Parkinson Alliance in New York is available |here|.



    PUBLICATIONS (free information)

    tip: visit the webpage to see if free copies can also be mailed to you :

     

     

    Publications page at NINDS (NIH) | link | includes the following:

     

    Parkinson's Disease Background (online from NINDS) | link | Includes early symptoms.

     

    Parkinson's Disease: Hope Through Research (online - from NINDS) | link | Also available free via mail; see the webpage


    • Neurological Diagnostic Tests and Procedures (online - from NINDS) | link | Also available free via mail; see the webpage

       


    • Deep Brain Stimulation for Parkinson's Disease (online - from NINDS) |link| Link to current studies on page (near bottom of article)

       


    • Tremor (online - from NINDS) |link|

       

    • Myoclonus Fact Sheet (online - from NINDS) | link | Also available free via mail; see the webpage


    • The American Parkinson Disease Association (APDA) has many great informational brochures and pamphlets available free via US mail. The request page (1 free copy of each per person) is found | here |. By submitting email data, you may also download some of their publications | here |. The listings include

      Good Nutrition in Parkinson's Disease; Be Active, A Suggested Exercise Program [with good illustrations!]; Be Independent, Equipment and Suggestions for Daily Living [with good illustrations of some handy-man modifications]; Young Parkinson's Disease Handbook; Aquatic Exercises for Parkinson's Disease - A Guide for Patients and Their Families ; Speaking Effectively: A Strategic Guide for Speaking and Swallowing ; Parkinson's Disease Handbook; Supplement #9: Helping Your Partner What Not to Do!; Supplement #12: The Fine Art of Re-Creation & Socialization w/Parkinson's Disease; Supplement #16: Why Parkinson's Disease Patients Should Not Go to The Emergency Room; Supplement #13: Medical Management of Parkinson's Disease; and Supplement #5: Hospitalization of a Parkinson Patient.

       

       

      Parkinson's Disease Foundation (PDF)has a page for informational brochures| link | and fact sheets| link | . You can also sign up for PDF's newsletter|link |.


    • P-I-E-N-O       |link| makes its Parkinson Caregiver's Guide available in its "Parkinsn Archive Treasures" online |link to page 1 of the Caregiver's Guide| link to page 2 with a clickable Table of Contents|


    • "Steps to Finding a Movement Disorder Specialist" by Beka Serdans, RN, MSN (online in pdf format) |link|


    • The American Academy of Neurology (AAN)|link| offers a free mail subscription to its "Neurology Now" publication to neurology patients who subscribe online. Current volumes are available in free online editions |link|.

       

       

    • The Michael Stern Parkinson's Research Centerat Rockerfeller University in New York has a brochure available by mail or online (see the sidebar on the mail request page for the "View the Brochure" link which accesses the online version). The brochure contains several images of the disease as seen in the brains of Parkinson's patients - with mild, moderate, and severe manifestations of the disease.


    • US Department of Transportationonline brochure: Driving When You Have Parkinson's Disease |link|